A non scientists guide to Hypopituritsm
Sometimes when i tell people what is wrong with molly they instantly look at me blankly. Almost scared like it sounds to complicated to even think about what that strange word means.
That in itself makes me think omg here we go again. In receipt of this question i Wait for the blank l wish i never asked look.
They will switch off within the first few sentences if i don't get this right. And i need to get it right, i want people to know whats going on. Her illness is invisible you see. Invisibility is hard to explain.
Not that everyone in the world needs my explantion i'm not looking for sympathy. Of course I would like people to understand why our lives are so different and indeed why i sometimes look like a tired scarecrow.
But they do need to be aware of this! Someone they know could potentially die from this condition if they remain untreated and undiagnosed. I have to make this thing as recogniseable as diabetes, asthma and the common cold.
I am a health activist !! Yes i have now admitted it! And it has officially been clarified this very week! I have been nominated for a health activist award, The surprise inside me was immense!! i've never had a title before :)
So I'm not a scientist a doctor a nurse or anything close to that. I'm just a normal mum who finally has a diagnosis for her forever poorly daughter.
Seeing as its also a life threatening condition i have made it my business as any parent would to research it!
In every dark corner in the universe! On every Google page in every book , In every nice dr's brain possibly known to mankind!
Hypopituritsm i mean the word in itself is long and a bit silly. No muggle (non scientist) would even relate the name to its problem.
Id like to call it ' My Brains pituitary gland is on the dole'.
It doesn't work you see. (the pituitary). Its trying its best to work but it just cant. Its faulty / on strike / a pointless waste of time.
So what does the pituitary gland do?
Its a small pea sized gland attached to your brain..
I mean why make something that small to do something that big??
It effectively keeps you alive!. It Seems crazy but who are we to argue with the great inventor of the human body? Mother Nature herself?
So here you have this small pea in your head. Look at it as the sorting office for the postal service.
Every day all day long it is supposed to be sending messages / letters to your endocrine system.. What the hell is an endocrine system? Lets call that most of your insides. Your glandular system.
For example its 4 am. Your body needs to start the waking up process...
Your pituitary gland kindly sends a message to your adrenal glands. ( these sit on top of your kidneys). In turn they reply 'good morning and release some cortisol. (lets call that petrol) this is the very first fuel you need to start your day.
Your adrenals also have a big roll in your immune system. Your heart and blood pressure and many other things which keep you alive and healthy.
The main BIG DADDY of them all being your petrol!! Cortisol!! Without cortisol you would die. Simple.
Cars need petrol to go. We need cortisol to live. Cortisol by the way is a natural steroid.
Not only does this small pea give petrol to To you to live it also makes you grow.
It sends letters/ messages to your system so that you may release growth hormone. By the way you don't just need this to grow taller. You need it to keep your organs healthy. IT REPAIRS YOU EVERY NIGHT regenerates you to sustain an optimal health level. Amongst many other important things.
Your pea also helps your pee ... It sends messages / letters to your kidneys. So that they may filter your wee properly and stop it going straight through. As well as some more technical stuff.
It sends messages to help release hormones to sleep.
It also sends signals to your Thyroid. This too has many functions in keeping your body on an even Keele! so you may have GOOD health, energy and a good metabolism. And some more technical stuff.
It also sends signals / letters to your sex hormones! So that you may develop properly and reproduce if you so wish.... And you guessed some more technical stuff.
So that is the basics!!
Without your pituitary pea you are LITERALLY winging life in a human body.
If your pea does not work you are in some serious trouble.
So that's the easiest way i can think of to describe it.
THE PEA IN YOUR BRAIN has signaling problems.
Its not doing its job.
The letters / messages are not reaching their destinations leaving you open to seriously bad health and probable death.
Peas = petrol, energy, life, reproduction, healthy waterworks, healthy heart
THATS! what Hypopituritsm is !
.... And thats why im an artist and not a dr.
But in laymans terms i hope that you now understand my daughters rare condition.
No wonder she has been ill.
- 22. Oct, 2016
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