Things kept happening you see, things that would shape my baby's personality her fears her whole future, it might seem silly and over the top to suggest these things but its true, I still know her now and these things affected her, take note professionals
who work with kids, give them time, kindness and sympathy a normal child's world is not like your work environment, hospitals are scary places to kids, they are used to being safe at home where nothing scares or hurts them.
There was one occasion about a year later to the oxygen tent episode, moll was in hospital again, another chest infection, she had been taken off of the intravenous medication and she wouldn't take her antibiotics,
she wanted to go home to be with joshy and daddy, she really wanted to go home, the nurse said she could go home if she had her medicine, she was a baby you cannot reason with babies. To my horror she actually pinned her on the floor an forced it down her
This must have been the 10th hospital admission I had seriously
lost count by now but know it was in the double figures. Powerless again I'm open mouthed by this action. How dare this big overweight grown woman treat my baby like some kind of gladiator challenge, she's 2 years old she hates hospitals and she hates the
taste of that medicine.
I was secretly quite glad when she kicked her in the shins... what a bully of a horrible woman seriously she needed to get another job and not in a
I told her Moll was 2! 2 years old not just part of her 12 hour shift of tick boxes! medicine tastes horrible, forcing her like that was hardly going to
help me out in the future.... like when she was 6 and they tried to make her drink half a pint of baromeal (liquid white metallic tasting gunk) so they could do x rays of her tummy because it always windy and painful,
Moll was sick of hospitals all they bought was ill and pain, she's my child she's not going to go under the radar she will make her feelings known and im glad about this, children should always stick up for what they believe in, by this point already
and again we had been in for a few days , the radiographer got very angry with her and us because she wouldn't drink it, I still have the sarcastic comments he put on the xray form, I kept them purposely because of his rudeness. He had no idea what she had
been through with tests scans and hospital visits in the past, I really hope he doesn't end up with a poorly child to this day molly remembers him as the scary man who kept pacing up and down looking at his watch...grown adult v's child again.
I Am lucky to have such a supportive family and amazing husband.
Josh 4 years older than Moll would frequently
be staying at nanny and grampy's I've lost count of the times my friend Jane next door looked after him during the day until daddy returned home from work when I had rushed Molly over to hospital yet again because of another chest infection.
Thinking back the Dr who came in to our room when moll was 18 months or so old was on to something.. It broke my heart at the time I felt insulted by the way he spoke to me but he said they
were looking in to doing possible tests because Molly's face showed signs of something genetically wrong, he said her facial features were quite elfin like.
This is a term
I have heard many times over the years, most of her hospital notes / letters from consultants refer to the same words, I have kept all those too.
Although she was so small
and never seemed to grow very much and despite the Dr's thoughts that day she was never referred to an endocrinologist.
To be fair I had never heard of an endocrinologist
either but they deal with growth issues.
The focus was always put on just treating the symptoms and not the cause, I just trusted them and was very grateful that they made
her better so many times, I was exhausted. So this is what happened. Ive always had massive respect for drs and consultants and trusted them to do the best for my child, myself and martin were only 25 / 26 ourselves we were not drs all we could do was keep
saying it wasn't right, at that point she would be referred to someone else for more tests.
There was always this thing in my mind which knew Molly needed more care than your
average child, apart from being ill all of the time she needed extra care when she was well to prevent her from being ill.
I'd put this conclusion together even before she
You know those summer days which are cooler in the mornings ? Well most children would be fine in a cardigan on the way to school. Not my molly she always felt the
cold. Her little hands would be freezing on these mornings. I kid you not she had a fur coat on in that pushchair and probably blankets. I'm sure people thought I was completely nuts and way over protective but as she got older they understood. You see if
moll got cold Her body would shake, her lips would go blue soon after that she would develop a cold and her temperature would bomb up to 40. This was her bodies response to cold and illness.
This would then progress in to a chest infection where again her temperature would spike 40 and she literally would sleep for hours and hours, this was the 2nd high temp of the cold now infection
had set in and it was time to get her to the Dr's where they would send her to hospital. Yet more more antibiotics more needles and more trauma. There were some occasions the infection didn't develop as quickly (as a few days) so we had antibiotics at home
but we always ended up there eventually.
I cannot tell You how many times I said and explained this to drs this was not right her body was reacting to illness in a really
To be fair the consultant organised many tests over many years, and referred her to many consultants.... But maybe just not the right ones.
So lets say now Molly is 2 I'm downstairs she's in her cot. Again she is poorly and is on antibiotics, you could probably say to combat the chest infections she was on penicillin more than she was not on
it in the first 2 years of her life.
Back to that night. Molly is crying screaming in pain I rush in turn on the light and she cannot open her eyes they have swollen in to
big balls of skin. Her ears were 3 times the size they normally were and she was covered in red blotches (hives) I phoned out of hours immediately and took her straight to the hospital.... Antibiotic allergy number one.
So Molly continues to be poorly, oxygen tents, needles antibiotics and constant illness.
Double pneumonia age 3 found her coming home Christmas eve the tears in
josh's eyes age 7 when he thought father Christmas may have to visit the hospital instead of home were heart breaking. My poor little blonde boy his life revolved around hospitals and a poorly sister too.
By the time she was 4 she was allergic to another type of antibiotic this was her bodies way of saying that's just too much. To date she is now allergic to 4 different types this is not good for a child who is ill this much in fact it is very dangerous
and has resulted from treating the symptoms and not the cause.
So not to bore anyone this carried on... And on. The concentration was focused on her chest and after the pneumonia
again episode she was tested for cystic fibrosis. Now I'm not a religious person but I prayed to God this would show up negative, I had seen the poorly 'regulars' I called them who were in the wards too, these poorly children suffered so much, constant medication
and physio with low life expectancy.
I became a regular in the play room and really enjoyed drawing and colouring with all the kids, we played shops and tearooms kitchens and all kinds of games the kids laughed and we had a great time each ones hand bandaged with a cannula in all
going through the same thing as molly, luckily for some this would be an out of the blue hospital occurrence hopefully not to be repeated.
Heart breaking sights for Molly too the trauma and screaming was awful. Sleepless nights beeping machines rolls of trolley
wheels down the long corridors, The play room is such a sad place really, the kids were laughing and playing but not one of them wanted to be in that hospital, kids are of such a happy disposition though they are very resilient.
Its so difficult as a parent, we
know our children have to be there, we know they have to hurt so they can be made better, but what ever you do and how ever you explain it they are babies they are not going to get it.
Winters were always worse. I spent hours and hours with her over my knees in bed banging her
chest to relieve the congestion. I became the worlds best physiotherapist